LDN Recovery Stories
by Fritz Bell — "GoodShape"
[Editor’s Note: This page is in the process of being upgraded to our new format.]
Editor’s Note: Fritz Bell (of www.goodshape.net) has written about a series of remarkable outcomes associated with his support of LDN use. Here is his story:
My experiences with LDN began 16 years ago because my late wife, Polly, suffered tragically with Multiple Sclerosis (MS). In 1999 Polly was bedridden, I had mostly retired and had become her caregiver and an avid internet medical researcher, learning all that I could about managing MS. Forty years earlier I had served my military obligation as a Corpsman in the United States Air Force Reserve. I was aware of our broken medical system and also began to believe no existing neurologist understood MS. While low-dose naltrexone (LDN) dramatically reversed Polly’s MS symptoms from March 2000 to 2004, a genetic heart condition ended her life. Polly outlived her parents and siblings by several years, and she left us with many beautiful memories.
After a thousand nights on the internet and experimenting with many unusual "MS cures", one night in December of 1999 I read an article by Christina White in a monthly publication called "New Horizons". She had interviewed Dr. Bernard Bihari and described his success with a substance called low-dose naltrexone (LDN) treating HIV. She also wrote that he had successfully treated his daughter's friend with MS using the exact same drug.
Dr. Bihari began to offer LDN treatment to MS patients the following month in January 2000, and since I read posts on multiple medical message boards daily, I read one that indicated a new MS patient, Judy Lannigan, had received a prescription for LDN from Dr. Bihari. Her post in February read: “I have been taking the naltrexone now for one month....the results are good. My strength and stamina are up. My walking has improved a lot. For those of you not familiar with low dose naltrexone, its purpose is to stimulate the brain to release endorphins which in turn enhance the immune system.”
Between 2000 and 2004 I gave away over 1,500 free 90-day samples of a homemade MS histamine treatment and a also few dozen LDN Treatments, which included 3 “Revia” Naltrexone 50mg tablets, a 50ml amber bottle and a measuring dropper. It would require a book to detail the harassment and monitoring I endured in those years. But, in the end I was never charged for giving away free medicine for personal use. I did attempt to reduce my exposure by hiding behind the anonymous name, “GoodShape” and essentially operating out of a post office box for years.
Currently there are thousands, of patients with Multiple Sclerosis using LDN. Many of them were some of the first responders on our old GoodShape message board in March of 2000. I believe some have been contacted by Linda Elsegood for LDN Trust interviews.
In 2005 I was a guest speaker at the inaugural “Low-Dose Naltrexone Annual Conference” in New York City and spoke about the first major LDN facilitated cancer recovery that I had witnessed. In 2004 a friend had called me at our Florida home and said that her 88 year old father was dying with terminal prostate cancer; he had been in a coma and sent home from the hospital with hospice care to end his days. She wondered if it was too late to try, “that medicine you always talk about”, on her father. With nothing to lose, I provided her a bottle of liquid LDN and asked her to put a few drops in his permanently open mouth every evening. I left town the next day to spend the summer up north.
When I returned to Florida in December, she called to ask if I could come to dinner the following Friday. I accepted, and apologized about not having heard any news of her father. She said not to worry, and that she would tell me about him at dinner. Shortly after I arrived at dinner, which included a dozen family members, her father and mother walked in the door having just returned from a cruise. After three weeks in a coma and on intravenous feeding, a few drops of LDN over four evenings caused him to wake up and announce that he wanted milk.
He lived another four years and died in a hospital after surgery on an old appendix operation. I understand that his doctors had dismissed his LDN treatment as having little value no value.
This same friend, a few years later , convinced her brother to take LDN two weeks before scheduled surgery to remove damaged intestines caused by Crohn's Disease. After he entered the hospital and had his pre-op examinations completed, his physicians had sent him home as they could not find the area they planned to remove.
Both happy and sad LDN stories used to make me cry:
A woman, from the GoodShape message board, who had received medicine from me, wrote me a long email describing a June visit the previous year that she had with her sister and 15 year-old nephew. They had been to see the oncologist who was treating the young man’s glioblastoma, a fast-growing and often fatal brain tumor.
During the visit, the family was advised that the oncologist had exhausted all options for the 15 year-old and informed his mother that it was unlikely that he would make it to the end of the year. At that time, the woman offered her sister, the patient’s mother, naltrexone tablets and preparation materials. He began taking LDN shortly after that devastating doctor’s visit.
The following March the young man returned to the oncologist’s office with his mother and aunt. The group reviewed recent CT scans of his brain. Upon first look, the group saw no signs of the glioblastoma on the scans. According to the email that she sent to me, the physician left the examining room and brought back three additional oncologists who observed and commented on the scans and had a discussion in the hall. The young man’s oncologist returned and announced that the doctors had agreed that they would write up this boy's incredible remission in their hospital newsletter as the first miracle performed that year at the hospital's cancer unit.
The young man’s glioblastoma and miraculous remission was chronicled a couple of months later, but there was no mention of his elective LDN treatment. That story made me cry - with happiness.
A family friend had a 45 year-old son with incurable blood cancer called Multiple Myeloma that was bringing his life to an end. His family had spent hundreds of thousands of dollars on chemotherapy treatments and all kinds of modern cancer treatments to arrest this disease to no avail. Ultimately, he was bedridden at his elderly parent’s home with many visitors saying their goodbyes. I gave his sister the usual amber bottle containing liquid LDN and suggested that she give him a few drops every night to see what happened. The story I got a couple of weeks later was simply amazing.
After four days on the LDN treatment, he miraculously got out of bed! He dressed himself and came downstairs for breakfast to meet with some of his farewell visitors. His mother was so amazed by his apparent recovery that she called his oncologist to get him back on chemotherapy. Neither the mother nor the physicians believed that the LDN treatment was of any importance; he returned to chemotherapy and did not survive. That story made me cry, because it was so incredibly sad.
After years of vacationing in Michigan, I had become acquainted with a cleaning woman there in her sixties who had some drinking and smoking habits. When I saw her one June she told me that both she and her husband had undergone treatment for lung cancer. She also told me that her 40 year-old son had committed suicide during that summer and that she had decided against further cancer treatments. She did not feel that she could go on. I asked her if she would do me one big favor, and gave her a six-month supply of LDN with directions. She promised me she would take it and keep me informed.
In December she called, asking for more LDN and told me she had not felt this good in over two years. She was unloading truckloads of firewood and baking Christmas cookies for the first time in years. Her husband, who had not taken LDN, died from lung cancer the following summer. She was doing fine eight years later and moved to another state. I eventually lost touch with her; but was glad to have helped her receive a second chance at life.
My college roommate and good friend was diagnosed with Primary Lateral Sclerosis ten years ago. He became a permanent LDN user. He is now one of my healthiest friends! He still walks with a limp, but plays golf three times a week and has “shot his age” several times.
I know two 65 year-old men who have both been diagnosed with stage four prostate cancer and have been taking LDN for eight years. They do not know each other, but I have followed their progress and am happy to report both are living with a good quality of life. One lives down the street from me and the other lives on the west coast of Florida. Both retired at their physician’s urging and prediction that they only had months to live. One of these men was a promising new President of a State University; his career cut short after this serious diagnosis. Every time I get a report about these men, I receive the same update. At every visit with their oncologist, they are told they still have stage four prostate cancer and should prepare for the end.
My daughter in California once described an elderly man in her neighborhood who suffered from severe diabetes. One of his legs had been bleeding every day for over six months. She gave him some of her LDN and within two weeks the bleeding stopped and never returned.
I began my own LDN treatment to test it for my wife and others in March of 2000. After many success stories were reported on our message board, I began taking LDN permanently, in hopes of preventing future disease. For me, it removed some early fears of prostate cancer and may have saved me from some minor illnesses. I am sure it has cured my lifetime problem of hypoglycemia. After having avoided sugar my entire life, now I can have a stack of pancakes and syrup! I am making up for some pleasures I missed in my youth and still maintaining my LDN regimen, fifteen years later.
In the early years I gave away a lot of Bristol Myers 50mg “Revia” Naltrexone Tablets along with amber bottles, droppers and instructions to create homemade liquid LDN. But now that I am getting older, and the powers that be are getting stronger, I have slowed the fight. While a U.S. citizen is, theoretically, allowed to purchase drugs via the internet without a prescription for their own use, today every one of my original suppliers is apparently out of “Revia” Naltrexone Tablets and when I do find a source of “Revia” Naltrexone substitutes it comes from the far east and they want five to ten times the price I paid just a decade ago. I also cannot trust the quality or authenticity of other brands.
The good news about LDN keeps spreading through the internet and the medical world. Thanks to organizations like LDN Research Trust and endless internet postings from dozens of intelligent, caring people like Linda Elsegood, Julia Schopick and Dudley Delany. And, also thanks to the growing number of Doctors like Bob Lawrence, Burt Berkson and Jill Smith and many others, the work of Dr Bihari and Dr David Gluck continues and an ever higher level of respect is being generated for this truly remarkable healing and lifesaving substance. I am genuinely pleased to watch the slow but growing recognition that LDN is securing.
My hope is that further research and advocacy for LDN as a viable and FDA recognized treatment for autoimmune disease, cancer, and other disorders will continue to be done. The possibilities of what this treatment can do may be endless.
Fritz Bell, “GoodShape”